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National Organizations
National Down Syndrome Congress
National Down Syndrome Society
National Assoc. for Down Syndrome
International Mosaic Down Syndrome Assoc.
Resources for the Spanish speaking community:
http://www.wrightslaw.com/idea/art/10.tips.steedman.pdf
http://www.nichd.nih.gov/publications/pubs/downsyndrome/down-sp.ht
http://kidshealth.org/kid/en_espanol/enfermadades/down_syndrome_esp.html
http://www.nads.org/docs/DS_Facts_Spanish.pdf
http://empresas.mundivia.es/downcan/programa_salud.html
Online Blogs, Magazines and Newsletters
Down Syndrome Quarterly (a multi-disciplinary journal)
Disability Solutions
Down Syndrome Amongst Us
Blog for Down Syndrome
General Health Guidelines
Health Care Guidelines for People with DS
Spanish Edition of DSMIG Guidelines
Down Syndrome: Health Issues, from Dr. Len Leshin
Genetics of DS
Dr. Korenberg’s Chromosome 21 Phenotype Mapping Project
Online Mendelian Inheritance in Man (OMIM) Gene Map of chromosome 21
Risk and Recurrence of Down Syndrome by Dr. Paul Benke
What is Mosaic Down Syndrome? by Carol Strom
Animations of Meiosis and Fertilization
Specific Medical Topics in DS
Center for Motor Behavior in Down Syndrome
Down Syndrome & Autistic-Spectrum Disorder
Growth Charts for Children with Down Syndrome
Hip Instability in Down Syndrome by Kim Voss
My Brother and Me: about Down Syndrome and Alzheimer’s
Other Resources for Parents
Breastfeeding and Down Syndrome, by the La Leche organization
Communicating Partners, Dr. James McDonald’s program
Diagnosis: Down Syndrome (a collection of stories for new parents of children with DS)
Down Syndrome - For New Parents (by The Paul Family)
Other Great Sites
Adult Artists with DS
Chris Burke Fan Club Website
Sujeet Desai: Pianist Extraordinaire
Michael Jurogue Johnson: a painter and illustrator with DS
Raymond Hu’s Website: his story and paintings
Jane Cameron, Sunshine Girl
The Marketplace
Specs4us - Frames specially formatted to fit children with Down Syndrome
“Beautiful Faces” Calendars and Note Cards
Baby K'Tan Carriers
U.S. Local Organizations
Northeast
Aim High! (Albany, NY)
Bringing Up Down Syndrome (Southern NJ)
Connecticut Down Syndrome Congress
Down Syndrome Support of Genesee County (NY)
Down Syndrome Society of Rhode Island
Massachusetts DS Congress
Trisomy 21 of Northern New York
Southeast
ARC Broward
Down Syndrome Assoc.of Middle Tennessee
DS Broward.org
Down Syndrome of Louisville, KY
Family Network on Disabilities of Florida, Inc.
God's Little Acres
Gold Coast Org. of Palm Beach County, FL
Hope Haven Children’s Clinic and Family Center
Lindsey Rae Foundation (Broward)
Piedmont DS Support Network (N Carolina)
PODS Angels Support Group Foundation, Inc.
Special Olympics Florida
Triangle Down Syndrome Network (N Carolina)
Up With Downs (Shreveport, LA)
Middle
West & Southwest
Down Syndrome Assoc. of Houston
Down Syndrome Assoc. of Los Angeles
Down Syndrome Connection of Tucson
Down Syndrome Exchange, Southern CA
Down Syndrome Guild of Dallas
Down Syndrome Organization of Southern Nevada
Down Syndrome Partnership of Tarrant County (Ft. Worth)
Down Syndrome Support Group of the High Desert
Sharing Down Syndrome Arizona
Rocky Mountain/Northwest
Colorado Springs Down Syndrome Assoc.
Down Syndrome Outreach of Whatcom County (WA)
Mile High Down Syndrome Assoc. (Denver area)
Upside! (Wash.)
Utah Down Syndrome Foundation
Intercontinental US
Alaska Chapter of the NDSC
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